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    Last Updated: 10/30/2025

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    MediFind found 113 doctor with experience in Caffey Disease near Grand Rapids, MI. Of these, 99 are Experienced and 14 are Advanced.

    Location
    LocationClose
    113 providers found
      Matthew R. Steensma
      Advanced in Caffey Disease
      Pediatrics | Surgical Oncology
      Advanced in Caffey Disease
      Pediatrics | Surgical Oncology

      Corewell Health Orthopedic Oncology - Lemmen-Holton

      145 Michigan Street Northeast, Suite 5500, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist in Grand Rapids, Michigan. Dr. Steensma has been practicing medicine for over 23 years and is rated as an Advanced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement. Dr. Steensma is currently accepting new patients.

      Rima Shah
      Experienced in Caffey Disease
      Internal Medicine
      Experienced in Caffey Disease
      Internal Medicine

      Corewell Health Internal Medicine - 426 Michigan St NE

      426 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      26+ years
      Languages Spoken:
      English

      Rima Shah is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Shah has been practicing medicine for over 26 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. Her top areas of expertise are Melorheostosis with Osteopoikilosis, Melorheostosis, Osteopenia, and Sciatica.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Anne M. Mccarthy
      Experienced in Caffey Disease
      Pediatrics | Internal Medicine
      Experienced in Caffey Disease
      Pediatrics | Internal Medicine

      Corewell Health Family, Internal And Pediatric Medicine - 426 Michigan St NE

      426 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      22+ years
      Languages Spoken:
      English

      Anne Mccarthy is a primary care provider, practicing in Pediatrics and Internal Medicine in Grand Rapids, Michigan. Dr. Mccarthy has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. Her top areas of expertise are Breast Cancer, Chronic Pain, Sciatica, and Pulmonary Tuberculosis.

      Learn about our expert tiers
      Brett T. Brinker
      Experienced in Caffey Disease
      Hematology Oncology
      Experienced in Caffey Disease
      Hematology Oncology

      The Cancer & Hematology Centers

      145 Michigan Street Northeast, Suite 3100, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      25+ years
      Languages Spoken:
      English
      Accepting New Patients

      Brett Brinker is a Hematologist Oncology provider in Grand Rapids, Michigan. Dr. Brinker has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are B-Cell Lymphoma, Acute Myeloid Leukemia (AML), Non-Hodgkin Lymphoma, Acute Myeloblastic Leukemia without Maturation, and Bone Marrow Aspiration. Dr. Brinker is currently accepting new patients.

      Michael R. Stevens
      Experienced in Caffey Disease
      Pediatric Orthopedics
      Experienced in Caffey Disease
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      8+ years
      Languages Spoken:
      English
      Accepting New Patients

      Michael Stevens is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Stevens has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Beukes Familial Hip Dysplasia, Knock Knees, Flat Feet, and Macrodactyly of the Foot. Dr. Stevens is currently accepting new patients.

      John W. Kemppainen
      Experienced in Caffey Disease
      Pediatric Orthopedics
      Experienced in Caffey Disease
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English
      Accepting New Patients

      John Kemppainen is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Kemppainen has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Scoliosis, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome. Dr. Kemppainen is currently accepting new patients.

      Lisa D. Maskill
      Experienced in Caffey Disease
      Pediatric Orthopedics
      Experienced in Caffey Disease
      Pediatric Orthopedics

      Corewell Health Pediatric Orthopedics - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 4150, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      20+ years
      Languages Spoken:
      English
      Accepting New Patients

      Lisa Maskill is a Pediatric Orthopedics provider in Grand Rapids, Michigan. Dr. Maskill has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. Her top areas of expertise are Brachydactyly Type A2, Accessory Navicular Bone, Brachydactyly Type C, and Brachydactyly Type B. Dr. Maskill is currently accepting new patients.

      Advanced in Caffey Disease
      Advanced in Caffey Disease

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kevin Gostenik is a Radiologist in Grand Rapids, Michigan. Dr. Gostenik is rated as an Advanced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Osteopenia, Melorheostosis with Osteopoikilosis, Melorheostosis, and Ureterocele. Dr. Gostenik is currently accepting new patients.

      Experienced in Caffey Disease
      Interventional Radiology | Radiology
      Experienced in Caffey Disease
      Interventional Radiology | Radiology

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Orrie Close is an Interventional Radiologist and a Radiologist in Grand Rapids, Michigan. Dr. Close is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Peritonitis, Secondary Peritonitis, Ascites, Osteoarthritis, and Bone Marrow Aspiration. Dr. Close is currently accepting new patients.

      Experienced in Caffey Disease
      Experienced in Caffey Disease

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Brett Kucej is a Radiologist in Grand Rapids, Michigan. Dr. Kucej is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Emphysema, Bronchogenic Cyst, Gallbladder Disease, and Pulmonary Fibrosis. Dr. Kucej is currently accepting new patients.

      Experienced in Caffey Disease
      Experienced in Caffey Disease

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      David Fry is a Radiologist in Grand Rapids, Michigan. Dr. Fry is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Bronchogenic Cyst, Pleurisy, Pleural Effusion, and Splenomegaly. Dr. Fry is currently accepting new patients.

      Experienced in Caffey Disease
      Experienced in Caffey Disease

      Advanced Radiology Services PC

      100 Michigan Ave Ne, 
      Grand Rapids, MI 
       (0.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jeffrey Knake is a Radiologist in Grand Rapids, Michigan. Dr. Knake is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Baker Cyst, Tenosynovitis, Rhizarthrosis, and Synovitis. Dr. Knake is currently accepting new patients.

      Experienced in Caffey Disease
      Internal Medicine
      Experienced in Caffey Disease
      Internal Medicine
      426 Michigan St Ne, 
      Grand Rapids, MI 
       (0.7 miles away)
      Languages Spoken:
      English

      Edward Millermaier is a primary care provider, practicing in Internal Medicine in Grand Rapids, Michigan. Dr. Millermaier is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Chronic Cough, Vertigo, Fainting, and Melorheostosis.

      Experienced in Caffey Disease
      Interventional Radiology
      Experienced in Caffey Disease
      Interventional Radiology

      Corewell Health Grand Rapids Hospitals Neurosurgery - 275 Michigan St NE

      275 Michigan Street Northeast, 
      Grand Rapids, MI 
       (0.9 miles away)
      Experience:
      30+ years
      Languages Spoken:
      English

      Baljit Deol is an Interventional Radiologist in Grand Rapids, Michigan. Dr. Deol has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Secondary Peritonitis, Peritonitis, Brain Aneurysm, Gastrostomy, and Bone Marrow Aspiration.

      Experienced in Caffey Disease
      Radiology | Neuroradiology
      Experienced in Caffey Disease
      Radiology | Neuroradiology

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Spear is a Radiologist and a Neuroradiologist in Grand Rapids, Michigan. Dr. Spear is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Progressive Familial Intrahepatic Cholestasis Type 3, Progressive Familial Intrahepatic Cholestasis Type 2, Progressive Familial Intrahepatic Cholestasis Type 1, and Visceromegaly. Dr. Spear is currently accepting new patients.

      Experienced in Caffey Disease
      Experienced in Caffey Disease

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Cameron Richardson is a Radiologist in Grand Rapids, Michigan. Dr. Richardson has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Progressive Familial Intrahepatic Cholestasis Type 3, Progressive Familial Intrahepatic Cholestasis Type 2, Progressive Familial Intrahepatic Cholestasis Type 1, Visceromegaly, and Bone Marrow Aspiration. Dr. Richardson is currently accepting new patients.

      Experienced in Caffey Disease
      Experienced in Caffey Disease

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mario Orsini is a Radiologist in Grand Rapids, Michigan. Dr. Orsini is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Pleurisy, Bronchogenic Cyst, Pleural Effusion, and Osteopenia. Dr. Orsini is currently accepting new patients.

      Experienced in Caffey Disease
      Radiology | Interventional Radiology
      Experienced in Caffey Disease
      Radiology | Interventional Radiology

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mark Rapoport is a Radiologist and an Interventional Radiologist in Grand Rapids, Michigan. Dr. Rapoport is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Secondary Peritonitis, Peritonitis, Melorheostosis, Bone Marrow Aspiration, and Liver Embolization. Dr. Rapoport is currently accepting new patients.

      Experienced in Caffey Disease
      Radiology | Interventional Radiology
      Experienced in Caffey Disease
      Radiology | Interventional Radiology

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Languages Spoken:
      English, Croatian
      Accepting New Patients

      Zdravko Skrtic is a Radiologist and an Interventional Radiologist in Grand Rapids, Michigan. Dr. Skrtic is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Boils, Ascites, Stomach Cancer, Gastrostomy, and Bone Marrow Aspiration. Dr. Skrtic is currently accepting new patients.

      Experienced in Caffey Disease
      Experienced in Caffey Disease

      Kent Radiology PC

      200 Jefferson Ave Se, 
      Grand Rapids, MI 
       (1.0 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Adam Lenger is a Radiologist in Grand Rapids, Michigan. Dr. Lenger has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Caffey Disease. His top areas of expertise are Progressive Familial Intrahepatic Cholestasis Type 3, Progressive Familial Intrahepatic Cholestasis Type 2, Progressive Familial Intrahepatic Cholestasis Type 1, and Aseptic and Alopecic Nodules of Scalp (AANS). Dr. Lenger is currently accepting new patients.

      Showing 1-20 of 113

      Last Updated: 10/30/2025

      What is the definition of Caffey Disease?

      Caffey disease, also called infantile cortical hyperostosis, is a bone disorder that most often occurs in babies. Excessive new bone formation (hyperostosis) is characteristic of Caffey disease. The bone abnormalities mainly affect the jawbone, shoulder blades (scapulae), collarbones (clavicles), and the shafts (diaphyses) of long bones in the arms and legs. Affected bones may double or triple in width, which can be seen by x-ray imaging. In some cases two bones that are next to each other, such as two ribs or the pairs of long bones in the forearms (radius and ulna) or lower legs (tibia and fibula) become fused together. Babies with Caffey disease also have swelling of joints and of soft tissues such as muscles, with pain and redness in the affected areas. Affected infants can also be feverish and irritable.

      When should I see a Caffey Disease doctor near Grand Rapids, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Caffey Disease doctor near Grand Rapids, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Caffey Disease doctors near Grand Rapids, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Caffey Disease doctors near Grand Rapids, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Caffey Disease doctor near Grand Rapids, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Caffey Disease doctor search results page. 

      Why is it important to get a second opinion from a different Caffey Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Caffey Disease doctor near Grand Rapids, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Caffey Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Caffey Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Caffey Disease doctors near Grand Rapids, MI?

      Look for the filter feature on the left side of the Caffey Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Caffey Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Caffey Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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